Data Access Policy

Data collected in the MLDi registry can be used for scientific research, drug development, post-marketing evaluation, and health technology assessments. Data will be anonymised (or pseudonymised) and cannot be redirected to individual patients.

Request Data

To request data, the Data Request Form needs to be completed and submitted to The Board of the MLDi will assess the request.

Data Release

After approval, the relevant data will be released in a secured workspace using the Digital Research Environment application in which data can be analysed and stored. Aggregated data, including tables and figures, can be downloaded after approval.

Process overview

More information

For more information about the data access policy, please read the standard operating procedure on data requests.