Medicijn voor de Maatschappij: The MLDi is part of the platform ‘Medicijn voor de Maatschappij’ for which funding is provided by the Nationale Postcode Loterij (part of Dutch Charity Lotteries). This platform works on sustainable and affordable availability of medicines for rare diseases. More information can be found on this website (in Dutch): www.medicijnvoordemaatschappij.nl
Zorginstituut Nederland: The MLDi is partially supported by the National Health Care Institute (Zorginstituut Nederland) in the context of the Dutch program ‘Managing patient registries for expensive drugs.’ More information about this project can be found on this website (in Dutch).
Amsterdam UMC: This project is partly funded by Amsterdam UMC.
Amsterdam Leukodystrophy Center: The MLDi is coordinated by the ALC. This is the expert center on leukodystrophies in the Netherlands, led by professor Marjo van der Knaap. The ALC is affiliated with the Amsterdam UMC and member of the European Reference Network on Rare Neurological Diseases (ERN-RND).
European Reference Network for Rare Neurological Diseases: ERNs are expert networks for rare or low prevalence complex diseases. The ERN-RND fully endorsed the MLD initiative.