The MLD initiative has developed an international registry for patients with MLD. In this registry, patient data is collected using patient records and sometimes questionnaires. The data will be used for research, drug-development, and regulatory decision-making.
If you, your child, or your loved one is diagnosed with MLD, and you are willing to participate in the registry, you can fill in the form below. We will contact you and give you more information. Then you can decide if you would like to participate.